User and carer-centred respite care for people with dementia: developing methods of evaluating the effectiveness of different models
Award Number
08/1511/113Programme
Health and Social Care Delivery ResearchStatus / Stage
CompletedDates
20 March 2006 -19 March 2008
Duration (calculated)
01 years 11 monthsFunder(s)
NIHRFunding Amount
£215,911.00Funder/Grant study page
NIHRContracted Centre
University of Newcastle upon TynePrincipal Investigator
Professor John BondWHO Catergories
Models across the continuum of careTools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 120 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | 08/1511/113 |
|---|---|
| Status / Stage | Completed |
| Start Date | 20060320 |
| End Date | 20080319 |
| Duration (calculated) | 01 years 11 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | University of Newcastle upon Tyne |
| Funding Amount | £215,911.00 |
Abstract
Dementia is a chronic, incurable and progressive condition affecting over 750000 people in the UK. Respite care is a key support service which aims to meet the complex health and social care needs of people with dementia and their carers. Recent policy initiatives have emphasised the need for more diverse models of respite care to address criticisms of the lack of choice, quality and appropriateness of existing services. The development of a range of models of respite care also has the potential to meet the requirement for person-centred care (Standard 2 of the NSF for Older People). Little is known, however, about the extent to which different models of respite care facilitate the delivery of person- and carer-centred care, or their relative effectiveness. The sensitivity and scope of outcome measures used to evaluate respite care services has been questioned and few existing measures explicitly address person- and carer-centred care. Although standards relating to person-centred care and respite care services are available, the issue of how to operationalise and evaluate these standards in practice is under-researched. The proposed project will use multiple methods to develop and test tool(s) for evaluating person- and carer-centredness which are applicable to a range of models of respite care. The work will involve four work packages (WP): WP1 Desk research and telephone surveys to: (i) identify the range of models of respite care for people with dementia and their carers; (ii) describe the models and how person- and carer-centred care is implemented within each model (from the perspective of service commissioners or providers); and (iii) select contrasting models for inclusion in WP2 and WP4. WP2 Focus groups and semi-structured interviews with people with dementia, carers and service providers to develop a framework of components of person- and carer-centred care. This will include a detailed exploration of the extent to which components are consistent within and between stakeholder groups and across different models of respite care. WP3 Development of a toolkit for evaluating person- and carer-centredness. This will be achieved through mapping the components of person- and carer-centred care identified in WP2 onto existing tools for evaluating person-centredness, outcomes and quality of life. New tools will be developed to evaluate any components which are not included in existing measures. WP4 Comparative case studies to test the tool(s) across a range of models of respite care. The framework of components of person- and carer-centred care and the tool(s) identified will be field tested in a range of models of respite care. The methods used will include observation, informal interviews and cognitive interviews with all stakeholders. Following implementation in one setting, the framework and tool(s) will be refined as necessary before field testing in the next model of respite care. The findings will be summarised in a final report. The tool(s) developed will enable future evaluative studies to focus on aspects of care valued by people with dementia and their carers and will therefore have the potential to improve the quality of respite care.
Aims
The proposed project will use multiple methods to develop and test tool(s) for evaluating person- and carer-centredness which are applicable to a range of models of respite care. The work will involve four work packages (WP): WP1 Desk research and telephone surveys to: (i) identify the range of models of respite care for people with dementia and their carers; (ii) describe the models and how person- and carer-centred care is implemented within each model (from the perspective of service commissioners or providers); and (iii) select contrasting models for inclusion in WP2 and WP4.