Understanding and using experiences of dementia to develop a Socialcaretalk section for public, policy, educators and service providers
Award Number
DP08Programme
Three Schools’ Dementia Programme (2021-2024)Status / Stage
ActiveDates
1 May 2022 -29 February 2024
Duration (calculated)
01 years 09 monthsFunder(s)
NIHR SSCRFunding Amount
£340,706.00Funder/Grant study page
NIHR SSCRContracted Centre
University of YorkPrincipal Investigator
Lyndsay LindleyPI Contact
Lyndsay.lindley@york.ac.ukPI ORCID
0000-0002-5982-9679.Principal Investigator
Suzanne IiWHO Catergories
Models across the continuum of careTools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
Reference ID | 602 |
---|---|
Researcher | Reside Team |
Published | 29/06/2023 |
Data
Award Number | DP08 |
---|---|
Status / Stage | Active |
Start Date | 20220501 |
End Date | 20240229 |
Duration (calculated) | 01 years 09 months |
Funder/Grant study page | NIHR SSCR |
Contracted Centre | University of York |
Funding Amount | £340,706.00 |
Abstract
People with dementia want to enjoy life and do the things they like doing. It is not always easy for people to find the right information and support when they have just had a diagnosis. While information and advice from support groups and other services may be available, people are sometimes reluctant to use these services. People often find it helpful to listen to the stories of people who have been through similar experiences.
Socialcaretalk.org can be visited anytime by people who are worried about their own or relatives’ memory problems and the many associated practical issues.
Aims
The study aims to understand what matters to people living with dementia and carers of people with dementia. This research will be used to produce a resource through which people with dementia, their families and carers can find out what helped other people when they faced similar challenges. This will be used to create a new section for a website called Socialcaretalk.org.
The website will also include resources, based on the research, for health and care workers, and the people who train them. This will help staff to understand what matters to people living with dementia and their carers.
The information on the site will also help people to prepare for conversations with family, GPs and other health and care professionals.
Methods
The research team will create around 25-30 summaries, illustrated with interview clips, of topics that matter most to the people we interview. The website will include hundreds of extracts from filmed or audio-recorded interviews with people with direct experience of dementia.