The transition from cognitive impairment to dementia: older people’s experiences
Award Number
08/1809/229Programme
Health and Social Care Delivery ResearchStatus / Stage
CompletedDates
2 September 2008 -1 July 2010
Duration (calculated)
01 years 09 monthsFunder(s)
NIHRFunding Amount
£225,965.00Funder/Grant study page
NIHRContracted Centre
King's College LondonPrincipal Investigator
Professor Jill ManthorpePI Contact
jill.manthorpe@kcl.ac.ukPI ORCID
0000-0001-9006-1410WHO Catergories
Models across the continuum of careTools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 78 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | 08/1809/229 |
|---|---|
| Status / Stage | Completed |
| Start Date | 20080902 |
| End Date | 20100701 |
| Duration (calculated) | 01 years 09 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | King's College London |
| Funding Amount | £225,965.00 |
Abstract
This study addresses a major transition for individuals: embarking on the transition to being a person with dementia. The case for looking at people’s experiences is strong at this time, with a raft of changes proposed for services, professional roles and funding mechanisms. The organisational perspective is timely, since services will need to have up to date knowledge of people’s expectations, wishes and fears. This is a qualitative exploratory study. The study is located in 3 diverse settings: north London, Salford and Newcastle/Northumbria. Their diversity will enable the study to reflect different experiences and different service configurations. Phase 1 is preparatory, building literature and theoretical framework; setting up agreements with sites and ethics and research governance permissions. Phase 2 centres on recruitment and data collection in each site and detailed analysis. Phase 3 will be the period for writing and dissemination. A set of 90 interviews will be obtained and analysed. All phases will be informed by a national reference group and local user and carer advisory groups. The study will be of benefit to the NHS, its partners and to people embarking on the diagnostic process and those supporting them.
Aims
The aim of the research is to understand the experiences, expectations and service needs of becoming an older person with dementia from the perspective of older people and their supporters/carers.