The transition from cognitive impairment to dementia: older people’s experiences

Award Number
Health and Social Care Delivery Research
Status / Stage
2 September 2008 -
1 July 2010
Duration (calculated)
01 years 09 months
Funding Amount
Funder/Grant study page
Contracted Centre
King's College London
Principal Investigator
Professor Jill Manthorpe
PI Contact
WHO Catergories
Models across the continuum of care
Tools and methodologies for interventions
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID78
ResearcherReside Team


Award Number08/1809/229
Status / StageCompleted
Start Date20080902
End Date20100701
Duration (calculated) 01 years 09 months
Funder/Grant study pageNIHR
Contracted CentreKing's College London
Funding Amount£225,965.00


This study addresses a major transition for individuals: embarking on the transition to being a person with dementia. The case for looking at people’s experiences is strong at this time, with a raft of changes proposed for services, professional roles and funding mechanisms. The organisational perspective is timely, since services will need to have up to date knowledge of people’s expectations, wishes and fears. This is a qualitative exploratory study. The study is located in 3 diverse settings: north London, Salford and Newcastle/Northumbria. Their diversity will enable the study to reflect different experiences and different service configurations. Phase 1 is preparatory, building literature and theoretical framework; setting up agreements with sites and ethics and research governance permissions. Phase 2 centres on recruitment and data collection in each site and detailed analysis. Phase 3 will be the period for writing and dissemination. A set of 90 interviews will be obtained and analysed. All phases will be informed by a national reference group and local user and carer advisory groups. The study will be of benefit to the NHS, its partners and to people embarking on the diagnostic process and those supporting them.


The aim of the research is to understand the experiences, expectations and service needs of becoming an older person with dementia from the perspective of older people and their supporters/carers.