Seeking users’ views in service delivery and organisation research
Award Number
08/1217/019Programme
Health and Social Care Delivery ResearchStatus / Stage
CompletedDates
2 May 2002 -31 January 2003
Duration (calculated)
00 years 08 monthsFunder(s)
NIHRFunding Amount
£59,954.00Funder/Grant study page
NIHRContracted Centre
University of StirlingContracted Centre Webpage
Principal Investigator
Professor Anthea InnesPI Contact
innesa2@mcmaster.caPI ORCID
0000-0002-5591-4083WHO Catergories
Methodologies and approaches for risk reduction researchTools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 203 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | 08/1217/019 |
|---|---|
| Status / Stage | Completed |
| Start Date | 20020502 |
| End Date | 20030131 |
| Duration (calculated) | 00 years 08 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | University of Stirling |
| Contracted Centre Webpage | |
| Funding Amount | £59,954.00 |
Abstract
This project aims to produce guidelines for researchers seeking to elicit service users’ views in service delivery and organisation research. The objectives of the project are: (i) To produce a review of the research literature attempting to elicit the views of service users and literature advising on the inclusion of service users in research (ii) To consult with users about appropriate ways of involving them in research (iii) To consult with researchers who have experience of eliciting service users’ views (iv) To develop suitable participatory research methods with service users, with a particular focus on the views of groups typically under-represented in research. Specifically, the study will focus on the following groups: – ?People with physical impairment – ?People with a learning disability – ?Mental health service users – Children – Older people – People with dementia – Minority ethnic communities In addition, some fieldwork will be conducted with ‘generic’ service users, the intention being that the guidelines should have wide relevance and applicability. Three main methods of data collection will be employed: 1) Literature Review. The literature review will seek to achieve a balance between a focus on the general population and on members of groups typically underrepresented in research, between studies conducted within different academic disciplines or organisational settings, and between actual research reports and more general overviews and discussion. We will concentrate on UK user-views research, not only because of time constraints but because it seems important to explore the issues in the context of our own policy, research and health care systems. 2) Interviews with 30 researchers across the UK with experience of eliciting users views. Telephone interviews will be conducted with 30 leading researchers across the UK, which will explore the following areas: – Purpose/role of research – The nature of research relations – Methodological issues, including issues of access, consent and confidentiality ?- Evaluation issues – Output and accessibility of findings – Methods 3) Consultation with 10 groups of service users. Focus groups will be conducted with each of the service user groups identified above, with participants recruited through voluntary organisations. An advisory group will be set up comprising a range of service users to offer advice about various aspects of study design and execution. The primary output of the proposed study is the production of guidance for researchers on how to elicit users’ views in service delivery and organisation research. The production of this guidance will be based on the analysis of the three data sources: the systematic literature review; interviews with researchers; and focus groups with service users. Thematic analysis will be conducted of the data collected from the focus groups and the interviews with researchers, based on a coding frame. In order to achieve a comprehensive thematic analysis of the particular, the common and the context, both cross-sectional and non-cross-sectional data organisation will be employed. At the end of the thematic analysis, it will be possible to integrate the rich information produced with the published accounts of research to produce three outputs: i) A literature review ii) A report iii) Guidance for researchers, which will include generic advice, supplemented with specific advice on the inclusion of under-represented groups at each key phase of the research study from initial planning to dissemination of findings.
Aims
This project aims to produce guidelines for researchers seeking the views of service users in service delivery and organisation research. The objectives of the project are: (i) To produce a review of the research literature which looks at how best to obtain the views of service users in research (ii) To consult with users about appropriate ways of involving them in research (iii) To consult with researchers who have experience of seeking service users’ views (iv) To develop ways of involving service users in research, with a particular focus on the views of groups typically under-represented in research.