Respite services for carers for people with dementia
Award Number
08/1309/048Programme
Health and Social Care Delivery ResearchStatus / Stage
CompletedDates
2 March 2003 -8 March 2003
Duration (calculated)
00 years 00 monthsFunder(s)
NIHRFunding Amount
£75,573.00Funder/Grant study page
NIHRContracted Centre
University of YorkContracted Centre Webpage
Principal Investigator
Dr Hilary ArksePI Contact
ha4@york.ac.ukWHO Catergories
Models across the continuum of careRisk reduction intervention
Tools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 60 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | 08/1309/048 |
|---|---|
| Status / Stage | Completed |
| Start Date | 20030302 |
| End Date | 20030308 |
| Duration (calculated) | 00 years 00 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | University of York |
| Contracted Centre Webpage | |
| Funding Amount | £75,573.00 |
Abstract
Dementia is estimated to affect over 700,000 people in the UK; by 2010 the number of sufferers is expected to grow to 840,000, and to have reached 1.5 million by 2050. The majority of older dementia sufferers are cared for at home by a relative or friend. Caring for dementia sufferers is known to be physically and emotionally exhausting; carers’ support needs are especially high. Respite care is a key support intervention, aiming to relieve carers of caring responsibilities in the short term, and offer a positive experience for the care recipient. Despite the potential range of service models, carers and care recipients often feel they have little choice in what is available. Aims: The overall aim of the review is to establish the current state of knowledge about the effectiveness and cost-effectiveness of respite services or ‘short breaks’ for carers for people with dementia. Within this overall aim, the study has the following key objectives: 1) To identify the full range of respite services for carers for people with Alzheimer’s disease and other forms of dementia, including younger people with dementia 2) To examine the evidence from published and grey literature about effective and cost-effective respite services for carers for people with dementia 3) To further develop existing conceptualisations of ‘effectiveness’ and ‘cost-effectiveness’ specifically in relation to respite services for carers for people with dementia 4) To identify examples of good practice of respite care and short breaks in health and social services, as well as the voluntary and independent sectors, for carers for people with dementia 5) To advise the SDO which areas should be a priority for further research, having identified key gaps in the evidence base. Research: There are four components to the research. Literature review: we are undertaking a literature review of UK and international research studies published during the last 15 years. An information officer from the NHS Centre for Reviews and Dissemination at the University of York is devising and implementing the search strategy. Identification of examples of good practice: examples of good practice will be identified by drawing on: the literature review; examples already identified in a previous scoping study (see www.sdo.lshtm. ac.uk/mentalhealthcarers.htm) ; findings from the consultation (see below); existing formal networks (e.g. PRTC carers centre network); and the research team’s informal networks. Consultation: the consultation will have two complementary elements – consultation with key stakeholder organisations to examine views about respite services for carers for people with dementia in order to better understand what constitutes a ‘break’, which services best meet the needs of carers and care recipients, concepts of effectiveness and cost-effectiveness, and potential for developing more imaginative and innovative services consultation with carers. We will select four areas providing respite services that include examples of identified good practice and hold focus groups with carers in each area to discuss perceptions of ‘effectiveness’; how well these services meet their needs and those of their care recipients; what aspects or characteristics of the services are particularly valued and why; and more general issues relating to acceptability, accessibility, convenience, affordability, and cultural specificity. Findings: The study lasts 6 months, from February until July 2003. It is intended that the final report will include information about the effectiveness and cost-effectiveness of different types of respite care and short breaks.
Aims
The overall aim of the review is to establish the current state of knowledge about the effectiveness and cost-effectiveness of respite services or ‘short breaks’ for carers for people with dementia. Within this overall aim, the study has the following key objectives: 1) To identify the full range of respite services for carers for people with Alzheimer’s disease and other forms of dementia, including younger people with dementia 2) To examine the evidence from published and grey literature about effective and cost-effective respite services for carers for people with dementia 3) To further develop existing conceptualisations of ‘effectiveness’ and ‘cost-effectiveness’ specifically in relation to respite services for carers for people with dementia 4) To identify examples of good practice of respite care and short breaks in health and social services, as well as the voluntary and independent sectors, for carers for people with dementia 5) To advise the SDO which areas should be a priority for further research, having identified key gaps in the evidence base.