Research partnership on functional loss and rehabilitation towards the end of life
Award Number
NIHR135171Programme
Health Technology AssessmentStatus / Stage
ActiveDates
1 January 2022 -31 December 2022
Duration (calculated)
00 years 11 monthsFunder(s)
NIHRFunding Amount
£99,256.40Funder/Grant study page
NIHRContracted Centre
King's College LondonPrincipal Investigator
Dr Matthew MaddocksPI Contact
matthew.maddocks@kcl.ac.ukPI ORCID
0000-0002-0189-0952WHO Catergories
Risk reduction interventionTools and methodologies for interventions
Disease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 18 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | NIHR135171 |
|---|---|
| Status / Stage | Active |
| Start Date | 20220101 |
| End Date | 20221231 |
| Duration (calculated) | 00 years 11 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | King's College London |
| Funding Amount | £99,256.40 |
Abstract
Functional loss’ describes a person becoming unable to do the everyday activities they would like or need to do. These activities might include simple things like bathing and dressing, or more complex things like going shopping or managing bills. Life-limiting illnesses (like cancer, chronic lung disease, and dementia) and some symptoms (like pain, breathlessness, and fatigue) limit the everyday tasks people are able to do. As a result, functional loss is a common source of suffering for patients and their families. Rehabilitation aims to support a person to carry out everyday activities that have been affected by illness. This should be an important part of providing good palliative care. However, in practice, not everyone has equal access to rehabilitation. Where resources are limited, these services have often been stopped or not provided. This is partly due to a lack of high-quality research about the best way to deliver this type of support. WHAT IS THE AIM OF THE PARTNERSHIP? We aim to build a new research partnership focused on rehabilitation, to address functional loss in palliative and end of life care. Our proposed research partners are based in diverse areas (Edinburgh, East Anglia, Lancashire, Leeds, London and Nottingham), and include people with a range of research, clinical, and personal experience. By bringing together their complementary skills and sharing learning across the different research partners, we can improve the delivery of high-quality palliative rehabilitation research across the country. WHAT WILL THE PARTNERSHIP DO? Together with professionals and public members, our research partnership will complete the following activities: 1. Mapping and building skills: Across our partnership we will find out what current services are available, and what knowledge and skills people have. We will then create opportunities for people to share and improve their knowledge and skills by offering structured training sessions, mentorship, skill-sharing opportunities, and protected time to develop new research ideas. This will allow teams with more research experience to support teams with less experience to develop their skills. 2. Identifying important, unanswered research questions: We will work with professionals and members of the public to identify important unanswered research questions about functional loss and rehabilitation in palliative and end of life care. Using an online survey, we will then ask stakeholders to help rank which are the most important. 3. Developing high-quality research ideas: We will lead three collaborative workshops to develop new research ideas to answer the most important questions identified activity 2. During the workshops, participants will be supported to work closely with expert researchers and public members to review and strengthen their suggestions. WHAT IS THE ADDED VALUE OF THE PARTNERSHIP? Our partnership will ensure that diverse teams across the country are well-prepared to deliver high-quality research about functional loss and rehabilitation in palliative and end of life care. We will identify research priorities, and submit collaborative funding applications for studies to answer these questions. Overall, we hope that this work will improve care for patients and their families, and address inequalities in how rehabilitation is delivered during this important time.
Aims
The project aims to build a new research partnership focused on rehabilitation, to address functional loss in palliative and end of life care. Our proposed research partners are based in diverse areas (Edinburgh, East Anglia, Lancashire, Leeds, London and Nottingham), and include people with a range of research, clinical, and personal experience. By bringing together their complementary skills and sharing learning across the different research partners, we can improve the delivery of high-quality palliative rehabilitation research across the country.