Living well and Dying well for older people within the last year of life in rural and remote communities
Award Number
NIHR135350Programme
Public Health ResearchStatus / Stage
ActiveDates
4 February 2022 -4 January 2023
Duration (calculated)
00 years 11 monthsFunder(s)
NIHRFunding Amount
£99,958.25Funder/Grant study page
NIHRContracted Centre
Liverpool John Moores UniversityPrincipal Investigator
Professor Mari Lloyd-WilliamsPI Contact
Mlw@liverpool.ac.ukPI ORCID
0000-0002-9590-5288WHO Catergories
Models across the continuum of careDisease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 10 |
|---|---|
| Researcher | Reside Team |
| Published | 12/06/2023 |
Data
| Award Number | NIHR135350 |
|---|---|
| Status / Stage | Active |
| Start Date | 20220204 |
| End Date | 20230104 |
| Duration (calculated) | 00 years 11 months |
| Funder/Grant study page | NIHR |
| Contracted Centre | Liverpool John Moores University |
| Funding Amount | £99,958.25 |
Abstract
The rural population aged 65+ will grow by 50% by 2039. Using examples of dementia, stroke or cancer which have increased prevalence within older people in rural and remote areas and with lack of provision and access to palliative and end of life care, we will establish a partnership across the four nations to identify and answer key questions relating to models of care and service delivery and care interventions. Aims: We aim to improve palliative and end of life care for older people with dementia, stroke or cancer within the last year of life, living in rural or remote communities across the UK. In Phase 2 we will evaluate identified current models and interventions and co-develop and test new models and interventions acceptable to rural populations. Partnership Our partnership brings together older people, carers, PPIE volunteers, social care providers, advocacy groups, clinicians, community nursing, hospices and palliative care services, commissioners, local and national charities, community leaders and academics. We will encourage social care and allied health professionals to become involved in research and mentor post-doctoral researchers to co-lead funding applications Methods For Phase 1 we establish further links within our indicative rural and remote communities and as an open partnership, welcome all who wish to be involved. We will map models of existing palliative and end of life care exploring examples of good practice and innovative models for social care and palliative care delivery. We will host virtual stakeholder events within our indicative communities show-casing existing work and using James Lind Alliance principles to set research priorities. Jointly across the four nations we will co-identify top priorities and co-develop studies to answer each research priority for Phase 2 funding. We will identify post-doctoral researchers with interests in older people, palliative care and rural health and offer mentoring linked to NIHR mentoring to support post-docs as Co-I’s within Phase 2. We will develop a community of practice on rurality and older people’s palliative care. We will establish an academy of rural palliative and end of life care providing opportunities for individuals to develop connections with researchers and clinicians, to develop own ideas and identify opportunities for funding. We will build capacity beyond the life of the partnership, encouraging researchers to work within rural palliative and end of life care for older people. Impact and Dissemination Bringing together patients, carers and stakeholders from rural and remote areas across the four nations will enable high quality research addressing rural and remote palliative and end of life care needs to be identified and addressed and ensure a research community in rural palliative and end of life care is established. We will write up each workshop as points of learning.
Aims
The project aims to improve palliative and end of life care for older people with dementia, stroke or cancer within the last year of life, living in rural or remote communities across the UK.