Improving the experience of care for people with dementia in hospital: Systematic review of qualitative and quantitative evidence

Award Number
Health and Social Care Delivery Research
Status / Stage
1 February 2018 -
1 August 2019
Duration (calculated)
01 years 06 months
Funding Amount
Funder/Grant study page
Contracted Centre
University of Exeter
Principal Investigator
Professor Joanna Thompson-Coon
PI Contact
WHO Catergories
Models across the continuum of care
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID104
ResearcherReside Team


Award Number16/52/52
Status / StageCompleted
Start Date20180201
End Date20190801
Duration (calculated) 01 years 06 months
Funder/Grant study pageNIHR
Contracted CentreUniversity of Exeter
Funding Amount£307,759.08


To use existing evidence to direct change and improvements in the experience of care for people with dementia in hospital, their families and the staff that care for them. Methods: We will conduct 3 systematic reviews, develop a logic model and convene a series of UK regional consensus meetings to discuss findings in the context of existing services resulting in the co-production of plans for service change. Research questions: 1. What is the experience of people with dementia and their families of receiving care in a hospital setting? 2. What is the experience of hospital staff of caring for people with dementia? 3. What evidence is available to inform on the most effective and cost-effective ways to improve the experience of care for people with dementia in hospital? 4. What is the impact of such interventions on the health and wellbeing of the hospital staff and the families and informal carers of those with dementia? 5. Which factors are important in the successful delivery of approaches to improve the experience of care? PREPARATION: Consultation with the PAG to further develop and finalise the protocol before registration with the International Register of Systematic Reviews (PROSPERO). REVIEW: The search strategy will be developed by an Information Specialist (MR) in consultation with the PAG. Sources will include electronic databases and supplementary methods to identify grey literature. Inclusion and exclusion criteria will be applied to the title and abstract of each identified citation independently by 2 reviewers with disagreements being settled by discussion with a third. Population: People with dementia receiving care in a hospital setting, their families & the staff providing care; Intervention(s): Experience of care / interventions to improve experience of care; Comparator: Any; Outcomes: Any outcomes relating to the experience of care as reported by people with dementia, their families & hospital staff providing the care; Setting: Any hospital setting, including the process of transition into and out of hospital; Study design, publication date, language of publication: No restriction. Full texts will be obtained for papers that appear to meet the criteria and a similar process used. Standardised, piloted data extraction forms will be used to collect relevant data from each included paper. Appropriate quality appraisal checklists will be used according to study design. Quality appraisal and data extraction will be performed by one reviewer and checked by a second with disagreements settled through discussion with a third. Synthesis methods will be determined in response to the nature of the findings. INTEGRATION: We will bring together the findings from the three reviews through the development of a logic model. The logic model will be built column by column to map out the conjectured links between different types of intervention and anticipated outcomes, gaps in the evidence and factors that help or hinder intervention success. We will use face-to-face meetings, telephone conferences and email to ensure that the PAG are involved at all stages in contributing to the interpretation of the findings and the development of the logic model. CONSULTATION/PRE-IMPLEMENTATION: We will convene UK regional consensus meetings with providers, commissioners and recipients of services to discuss the findings in the context of existing services and co-produce plans for service change


To understand how to improve the experience of care for people with dementia in hospital, their families and the staff that care for them.