Forward with dementia: co-producing support for social care needs after a dementia diagnosis

Award Number
Three Schools’ Dementia Programme (2021-2024)
Status / Stage
17 February 2022 -
31 March 2023
Duration (calculated)
01 years 01 months
Funding Amount
Funder/Grant study page
Contracted Centre
University College London
Contracted Centre Webpage
Principal Investigator
Jane Wilcock
PI Contact
WHO Catergories
Models across the continuum of care
Tools and methodologies for interventions
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID596
ResearcherReside Team


Award NumberDP02
Status / StageActive
Start Date20220217
End Date20230331
Duration (calculated) 01 years 01 months
Funder/Grant study pageNIHR SSCR
Contracted CentreUniversity College London
Contracted Centre Webpage
Funding Amount£182,968.00


Many people living with dementia use homecare services to support them living at home. For people living with dementia without family or friends, homecare and other community services provide vital regular support and social contact. Most social care workers, especially homecare workers, often work alone, lack specific dementia training and are not confident in their roles.


This study aims to support people living with dementia and carers to live well after a dementia diagnosis and to help people in social care who are working with them. This study will build on earlier research that is providing post-diagnostic support for people living with dementia and carers through an online guide called Forward with dementia. It is an information website and personalised toolkit, that has been developed with, and for, people living with dementia and carers. The study will expand this to social care users and include information and guides for social care practitioners, particularly people working in homecare, to help support their clients.

Working together the study will produce and deliver, a tailored supportive guide to social care post diagnosis. By working in partnership with people living with dementia, carers and social care practitioners, dementia organisations and other experts it will:

Through interviews explore current experiences, information needs and gaps, what helps and what hinders post-diagnosis social care support
In workshops, investigate how and why people seek information during the COVID pandemic
Produce targeted information and practical tools to improve access to dementia related social care support
Develop and deliver a plan to make sure Forward with dementia reaches the right people, and develop strategies to include groups who are often left out (such as those from rural areas/specific cultural backgrounds)
Create better team-working between researchers social and health care workers.