COVID-19: Supporting family carers in making decisions for older relatives with dementia

Award Number
ES/V003720/1
Programme
Research Grant
Status / Stage
Completed
Dates
30 April 2020 -
10 November 2020
Duration (calculated)
00 years 06 months
Funder(s)
ESRC (UKRI)
Funding Amount
£71,062.00
Funder/Grant study page
ESRC
Contracted Centre
University College London
Contracted Centre Webpage
Principal Investigator
Professor Nathan Davies
PI Contact
nathan.davies@ucl.ac.uk
PI ORCID
0000-0001-7757-5353
WHO Catergories
Models across the continuum of care
Tools and methodologies for interventions
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID444
ResearcherReside Team
Published29/06/2023

Data

Award NumberES/V003720/1
Status / StageCompleted
Start Date20200430
End Date20201110
Duration (calculated) 00 years 06 months
Funder/Grant study pageESRC
Contracted CentreUniversity College London
Contracted Centre Webpage
Funding Amount£71,062.00

Abstract

If an older relative with dementia with suspected COVID-19 becomes unwell quickly, family carers and the person with dementia may have to make rapid decisions. Decisions may concern hospital admission or whether to receive care at home, social distancing, and which treatments the person may or may not wish to receive. This can include very difficult decisions such as whether the person wishes to be resuscitated or have other potentially traumatic treatments. These decisions will have an impact on the emotional wellbeing of both the family and person with dementia.We will produce an evidence-based decision tool to support family carers and people with dementia to make these difficult decisions during COVID-19.This project will consist of three phases: 1) We will identify key factors influencing the choice of place of death in older people, conducting a rapid review of the evidence; 2) We will review and analyse common challenges and decisions family carers of people with dementia are making in relation to COVID-19, from the Alzheimer’s Society online community forum. We will also explore concerns of people living with dementia during COVID-19 reported on the forum and; 3) Together with people living with dementia, family carers and health care professionals, we will develop a decision tool for family carers and people with dementia to use when making difficult decisions. The tool will provide carers with a clear framework to help them to make decisions and ease feelings of guilt, burden, stress, strain and anxiety. We will work closely with Marie Curie Charity, Alzheimer’s Society and British Geriatrics Society to disseminate the tool and our findings to the people who may benefit from using them.

Aims

We will produce an evidence-based decision tool to support family carers and people with dementia to make these difficult decisions during COVID-19.