Centring The Lived Experience Of Dementia Within Policy, Practice And Community Development
Study Code / Acronym
LivEDemAward Number
ES/X00838X/1Programme
Research GrantStatus / Stage
ActiveDates
3 January 2023 -28 February 2026
Duration (calculated)
03 years 01 monthsFunder(s)
ESRC (UKRI)Funding Amount
£479,862.00Funder/Grant study page
ESRCContracted Centre
University of StirlingContracted Centre Webpage
Principal Investigator
Richard WardPI Contact
richard.ward1@stir.ac.ukPI ORCID
0000-0001-6215-7503WHO Catergories
Models across the continuum of careDisease Type
Dementia (Unspecified)CPEC Review Info
| Reference ID | 440 |
|---|---|
| Researcher | Reside Team |
| Published | 29/06/2023 |
Data
| Study Code / Acronym | LivEDem |
|---|---|
| Award Number | ES/X00838X/1 |
| Status / Stage | Active |
| Start Date | 20230103 |
| End Date | 20260228 |
| Duration (calculated) | 03 years 01 months |
| Funder/Grant study page | ESRC |
| Contracted Centre | University of Stirling |
| Contracted Centre Webpage | |
| Funding Amount | £479,862.00 |
Abstract
The proposed research will empower people living with dementia and unpaid carers to influence the process of community development linked to the notion of dementia friendly communities and initiatives (DFCI). It will address the political exclusion of people living with dementia by generating learning about the process and outcomes of their engagement in community planning and commissioning; it will tackle social isolation through forging connections between networks of people with dementia, locally, nationally and internationally; and it will help to redefine public awareness and understanding of dementia by demonstrating the social contribution made by people living with dementia within their communities. In so doing, the research will contribute to a broader agenda for understanding how to address inequities and enhance resilience in local communities, it will help us understand how public space can be adapted and used to address marginalisation and social exclusion and will provide vital insights into the reform of community-based services and support, fit for purpose in the face of potential future threats and crises
Aims
This international team drawn from three countries (Canada, Germany, and UK) proposes to deliver a transnational programme of in-depth social science research that will investigate how the lived experience of dementia can contribute to the policy and practice of community development. The proposed research will empower people living with dementia and unpaid carers to influence changes being made to their communities as different countries and regions rethink and reorganise public space in the aftermath of COVID and in the face of other emerging global challenges. We will address the political exclusion of people living with dementia by generating learning about the process and outcomes of their engagement in community planning and commissioning. The research will tackle social isolation through forging connections between networks of people with dementia, locally, nationally and internationally. In the longer-term we aim to redefine public awareness and understanding of dementia by demonstrating the social contribution made by people living with dementia within their communities. In so doing, the research will inform a broader agenda for addressing inequities and enhancing resilience in local communities, helping us understand how public space can be adapted and used to address marginalisation and social exclusion and will provide vital insights into the much-needed reform of community-based services and support.