An empirical ethics study of the introduction of AI techniques to the assessment of cognitive decline

Award Number
213579/Z/18/Z
Award Type
Seed Awards in Humanities and Social Science
Status / Stage
Completed
Dates
28 October 2019 -
28 October 2021
Duration (calculated)
02 years 00 months
Funder(s)
Wellcome Trust
Funding Amount
£88,369.00
Funder/Grant study page
Wellcome Trust
Contracted Centre
Wellcome Sanger Institute
Principal Investigator
Dr Richard Milne
PI Contact
rjm231@cam.ac.uk
PI ORCID
0000-0002-8770-2384
WHO Catergories
Methodologies and approaches for risk reduction research
Tools and methodologies for interventions
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID333
ResearcherReside Team
Published12/06/2023

Data

Award Number213579/Z/18/Z
Status / StageCompleted
Start Date20191028
End Date20211028
Duration (calculated) 02 years 00 months
Funder/Grant study pageWellcome Trust
Contracted CentreWellcome Sanger Institute
Funding Amount£88,369.00

Abstract

The proposed research will examine how ethical concerns arise in the development of AI tools for screening and diagnosis and how and by whom they are addressed, focusing on the example of dementia. Further, it will examine the range of personal data on which such applications draw, and consider whether and how this affects what constitutes health data. The study proposes that applications of AI to dementia screening and diagnosis represent a particularly important case for investigation, given considerations about the nature of informed consent, and sensitivities associated with diagnosis, its communication and implications for individuals and families. The study will involve qualitative and ethnographic research with experts and members of the public toIdentify applications of AI to dementia research, and outline central social and ethical concerns;Examine how ethical considerations are being negotiated in the development of AI tools ;Explore expert, public and patient perceptions of what constitutes reasonable use of different forms of personal data;Conduct a workshop to expand discussion and support future project developmentThe project will result in outputs for clinical, policy and social science audiences, and form the basis for applications for funding to develop this work further.

Aims

This project will focus on AI and dementia. I will examine how experts involved in the development of AI tools encounter and resolve ethical challenges in their work, and how they and the public view the use of personal data to provide information about health.