Delivering safe, effective nutrition and hydration care to residents with dysphagia: a theory-based approach to developing a link dysphagia practitioner

Award Number
NIHR200091
Programme
Research for Patient Benefit
Status / Stage
Completed
Dates
2 August 2019 -
1 June 2021
Duration (calculated)
01 years 09 months
Funder(s)
NIHR
Funding Amount
£159,495.00
Funder/Grant study page
NIHR
Contracted Centre
The University of West London
Contracted Centre Webpage
Principal Investigator
Professor Jennie Wilson
PI Contact
jennie.wilson@uwl.ac.uk
PI ORCID
0000-0002-4713-9662
WHO Catergories
Development of novel therapies
Methodologies and approaches for risk reduction research
Risk reduction intervention
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID185
ResearcherReside Team
Published12/06/2023

Data

Award NumberNIHR200091
Status / StageCompleted
Start Date20190802
End Date20210601
Duration (calculated) 01 years 09 months
Funder/Grant study pageNIHR
Contracted CentreThe University of West London
Contracted Centre Webpage
Funding Amount£159,495.00

Abstract

Dysphagia is estimated to affect at least 50% of nursing home residents, especially those with stroke or dementia. It significantly increases their risk of choking, dehydration/malnutrition and pneumonia. These adverse events are associated with a poor quality of life and considerable healthcare costs, antimicrobial consumption and mortality. Clinical outcomes have been linked to the consistency with which compensatory swallowing strategies are implemented. However, the staff who deliver nutrition and hydration care to care homes residents can lack knowledge of the condition and useful strategies to prevent aspiration. Specialist Speech & Language Therapists (SLT) have limited resources to support and train care home staff. Developing an experienced care worker in the care home as a Dysphagia Link Practitioner (DLP) with formal links to the Speech & Language Therapy (SLT) service would facilitate the translation of knowledge and implementation of safe and effective nutrition and hydration care for residents with dysphagia. Aim This study aims to investigate what needs to be changed in residential care homes to increase adherence to safe nutrition and hydration care for people with dysphagia; and determine the appropriateness, acceptability and potential for a DLP role to reduce adverse events by supporting staff to deliver safer nutrition and hydration care. Methods A predominantly qualitative descriptive and developmental approach will be employed in two large care homes. It will use the Theoretical Domains and COM-B frameworks to observe current dysphagia practice, compliance with dysphagia guidelines and changes required to provide safe care; and explore system issues that would facilitate or obstruct development of a DLP and required behaviour changes. Process and outcome measures that could be used to determine effectiveness in a future intervention study will be captured from resident care records. The design will allow multiple perspectives to be elicited using a number of data collection methods and therefore allow data to be triangulated and provide a granular description of individual, system and service user perspectives. Conclusion The results will be used to build a robust intervention, underpinned by behavioural theory, to tackle the harm caused by poor quality and unsafe care practices in providing nutrition and hydration care for people with dysphagia which can be evaluated in a subsequent application for funding.

Aims

We aim to understand how the care for people in nursing and residential care homes who have a problem with swallowing, called dysphagia can be cared for safely and effectively.