Healthbridge: National Evaluation of Dementia Advisors and Peer Support Networks

Award Number
025/0058
Programme
Policy Research Programme
Status / Stage
Completed
Dates
2 April 2010 -
1 October 2012
Duration (calculated)
02 years 05 months
Funder(s)
NIHR
Funding Amount
£649,564.00
Funder/Grant study page
NIHR
Contracted Centre
University of Edinburgh
Principal Investigator
Professor Charlotte Clarke
PI Contact
charlotte.clarke@ed.ac.uk
WHO Catergories
Economic Impact of Dementia
Methodologies and approaches for risk reduction research
Disease Type
Dementia (Unspecified)

CPEC Review Info
Reference ID75
ResearcherReside Team
Published12/06/2023

Data

Award Number025/0058
Status / StageCompleted
Start Date20100402
End Date20121001
Duration (calculated) 02 years 05 months
Funder/Grant study pageNIHR
Contracted CentreUniversity of Edinburgh
Funding Amount£649,564.00

Abstract

The National Dementia Strategy (DoH 2009) promotes the use of peer support networks and dementia advisors. This acknowledges the part that lay and peer support and advisors can play in supporting communities and families, promoting: access to individuals who are marginalised, access from marginalised communities into health and social care systems, and alternative delivery mechanisms to a professional provider. However, the evidence base for the effectiveness of peer and lay roles and support is weak and the evidence is not sufficient to support or refute the role in promoting health and improving quality of life. The project team bring together expertise from 4 Universities and a range of health, social science disciplines with a distinct public health and knowledge exchange focus. Plan of Investigation: The study puts in place a framework through which there will be an iterative relationship between the national evaluation and the local demonstrator sites. Phase 1 is organised around a series of national collaborative workshops and will support the learning across sites, enable sites to influence the national evaluation, and provide a structured way in which the implementation of the demonstrator activity is supported. Phase 1 will also collect and analyse local minimum dataset information, including information relating to the health economic assessment. Phase 2 will provide detailed information on how different models are impacting on practice across the whole system, and importantly for people living with dementia. This will be achieved by carrying out detailed case study analyses. Potential Impact The evaluation is designed to support the implementation of the National Dementia Strategy demonstration sites and learning across the sites through a series of national collaborative workshops. In addition, the data collected is designed to inform the integration, sustainability and transferability of peer support networks and dementia advisors within the wider health and social care economy. As such, the study will impact on current demonstration activity and will inform future policy implementation and dementia care practices.

Aims

1. To describe the range of peer support network and dementia advisor pilot services, their evolution, establishment and delivery and governance characteristics, and to support their effective implementation. 2. To assess the new service models of peer support networks and dementia advisors in relation to: a. Influence on the wellbeing of people with dementia and carers. b. Contribution to achieving the objectives of the National Dementia Strategy. c. Integration, sustainability and transferability within the wider health and social care economy. 3. To identify ways in which the new service models contribute to the wellbeing and resilience of people with dementia and carers in relation to accessibility of services, involvement and information, support for making choices and independence.